Stephen

From Dublin, Born 1959

Stephen, an ambulance driver from Dublin, had been experiencing constant tiredness and nausea for several years, unaware these symptoms directly related to the hepatitis C he was carrying. Fortunately his G.P was informed about the virus, and suggested he should have the relevant blood test, which confirmed that he was positive.

He had little knowledge about the various different types of hepatitis and was referred straight away to the specialist liver unit. There they was offered him the standard treatment available in 2007.


Stephen continued to work part time whilst on treatment and feels he received an excellent level of support available to him 24/7, and now considers himself an expert on hepatitis C.

Unfortunately the treatment was unsuccessful, and by 2011 Stephen’s liver had severely deteriorated with him being diagnosed with liver cancer. He was placed on the transplant list, but due to his rare blood type he luckily received a transplant in just 12 days. However despite this, he was only given a 1.5% chance of surviving the operation.

Stephen says “I shouldn’t be here; even the 3 surgeons who had worked on me were amazed at how I had gone about my day to day life with a liver as badly damaged as mine.”

Although he still has hepatitis C, Stephen remains positive about the future and hopes to undergo treatment again with one of the more successful, new generation drugs that are slowly becoming available.

He says “I have more energy now than before and am continuing to live my life to the fullest; no one believes I had a transplant only 10 months ago”.

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Hepatitis and PWID/harm reduction 

 

11:35 – 11:40  

Chair: WHO – Intro and set the scene.  

 

11:40 – 11:55  

Co-chair:  EMCDDA – Monitoring viral hepatitis elimination among PWID in Europe. 

 

11:55 – 12:00 

ID 29: Ema Pos (not yet registered) 

Title: If the mountain won’t come to Mohammed: lessons from a decentralized Infectious Disease consultation. 

 

12:05 – 12:10  

ID 152: Brian Conway (Registered in person) 

Title: Community Pop-up Clinic: Cascade of Care and HCV Treatment of Vancouver’s inner-city PWID Populations.

 

12:10 – 12:15 

ID 212: Jasmine West (not yet registered) 

Title: From lived experience to lived expertise: a syndemic approach. 

 

12:15 – 12:20 

ID: 299 Mercy Nyakowa (Registered in person) 

Title: HCV and HBV prevalence and associated risk factors among people who inject drugs (PWIDs) in Kenya 

 

12:20 – 12:25 

ID: 133 Nalinikanta Rajkumar (Registered in person) 

Title: Rapid regimen of HBV vaccination: Does it work for high risk groups?  

 

12:25 – 12:30 

Q&A and closing remarks   

tHIS

 

IS 

 

BEN’S

 

 

 

BIG 

 

 

TEST

effective case finding strategies

Supported by Vir Biotechnology, Inc

During this session you will hear from hepatitis Delta expert, Dr. Maria Buti, and a patient who has lived with hepatitis Delta in a panel discussion moderated by Dr. Carey Hwang, Chief Medical Officer (interim) of Vir Biotechnology. This panel will inform perspectives on patient needs, opportunities for enhanced screening, and strengthening linkages to care.

Session Agenda

14:40 – 14:45    

Panel overview and introductions facilitated by Dr Carey Hwang (Vir Biotechnology)

14:45 – 15:05   

Panel discussion: Dr Maria Buti (University Hospital Vall d’Hebron, Spain), Milanka Barbosa, Dr Carey Hwang (Chief Medical Officer interim), Vir Biotechnology

15:05 – 15:10    

Final remarks and close