Urgent action is needed to tackle hepatitis B stigma and discrimination

Across the world, stigma and discrimination impact people living with hepatitis B, with careers and personal relationships affected. The impact of stigma and discrimination also affects families and communities and negatively impacts testing strategies. The Stigma Report released by WHA brings together the latest research on stigma and discrimination and the stories of the people and communities affected by hepatitis B. The report highlights the need to address hepatitis B stigma and discrimination so that no one has to suffer the additional consequences of living with hepatitis B. 

“Stigma and discrimination can have a huge impact on the lives of people living with hepatitis B. It impacts our rights to work, to travel and to live our lives. The Stigma Report shows that it is time to tackle this issue to protect the rights of the millions of people living with hepatitis B. We can no longer suffer in silence; the time for action is now.”

Two hundred ninety-six million people live with hepatitis B worldwide, and for many, their lives are made infinitely more challenging by stigma and discrimination. In a 2017 survey of WHA members, 93% of respondents indicated that hepatitis-related stigma and discrimination impacted people in their countries, yet little is being done globally to tackle the issue. 

"This new report highlights the real need for action to tackle stigma and discrimination. Decision-makers must work alongside the people and communities impacted by hepatitis B, stamp out the stigma and discrimination, and support the people and communities affected. We can’t wait for action; stigma harms people every day and stops people from coming forward for testing and screening services, causing late diagnosis of hepatitis B, leading to liver cirrhosis and liver cancer. Early diagnosis means that effective care and treatment can be made available. Decision-makers must understand the need to address stigma and discrimination as part of efforts to eliminate hepatitis B.”

The new report gives clear policy suggestions to assist decision-makers in addressing hepatitis B stigma and discrimination. Key to the success of these is the engagement of the people and communities impacted by hepatitis B. 

Download the report at www.worldhepatitisalliance.org/stigma-report

A webinar in December will bring together experts and people impacted by stigma and discrimination to discuss the issue and the actions needed to tackle stigma and discrimination. Sign up for the webinar at www.worldhepatitisalliance.org/registration 

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Hepatitis and PWID/harm reduction 

 

11:35 – 11:40  

Chair: WHO – Intro and set the scene.  

 

11:40 – 11:55  

Co-chair:  EMCDDA – Monitoring viral hepatitis elimination among PWID in Europe. 

 

11:55 – 12:00 

ID 29: Ema Pos (not yet registered) 

Title: If the mountain won’t come to Mohammed: lessons from a decentralized Infectious Disease consultation. 

 

12:05 – 12:10  

ID 152: Brian Conway (Registered in person) 

Title: Community Pop-up Clinic: Cascade of Care and HCV Treatment of Vancouver’s inner-city PWID Populations.

 

12:10 – 12:15 

ID 212: Jasmine West (not yet registered) 

Title: From lived experience to lived expertise: a syndemic approach. 

 

12:15 – 12:20 

ID: 299 Mercy Nyakowa (Registered in person) 

Title: HCV and HBV prevalence and associated risk factors among people who inject drugs (PWIDs) in Kenya 

 

12:20 – 12:25 

ID: 133 Nalinikanta Rajkumar (Registered in person) 

Title: Rapid regimen of HBV vaccination: Does it work for high risk groups?  

 

12:25 – 12:30 

Q&A and closing remarks   

tHIS

 

IS 

 

BEN’S

 

 

 

BIG 

 

 

TEST

effective case finding strategies

Supported by Vir Biotechnology, Inc

During this session you will hear from hepatitis Delta expert, Dr. Maria Buti, and a patient who has lived with hepatitis Delta in a panel discussion moderated by Dr. Carey Hwang, Chief Medical Officer (interim) of Vir Biotechnology. This panel will inform perspectives on patient needs, opportunities for enhanced screening, and strengthening linkages to care.

Session Agenda

14:40 – 14:45    

Panel overview and introductions facilitated by Dr Carey Hwang (Vir Biotechnology)

14:45 – 15:05   

Panel discussion: Dr Maria Buti (University Hospital Vall d’Hebron, Spain), Milanka Barbosa, Dr Carey Hwang (Chief Medical Officer interim), Vir Biotechnology

15:05 – 15:10    

Final remarks and close