RNGO “ISHONCH VA HAYOT”

Email

sergey.uchayev@mail.ru

Phone

T: +998903183747

Web

https://www.plwh.uz/

Address

Tuzel-1 house-10, apartment-32 Tashkent, city 100207
About RNGO “ISHONCH VA HAYOT”

Uzbeki NGO, ISHONCH VA HAYOT, recognises that viral hepatitis (B and C) is not only a medical issue but also a social one, often linked to stigma, poverty, and marginalisation. The organisation integrates the fight against hepatitis into its broader mission to protect health, dignity, and human rights, particularly among people living with HIV, those who use drugs, and other vulnerable groups.

Their work focuses on addressing the barriers that prevent people from accessing testing, diagnosis, and treatment. These include low awareness, fear, discrimination, and financial hardship. ISHONCH VA HAYOT believes that the involvement of affected communities is essential to closing these gaps and ensuring no one is left behind.

Key areas of work include:

  • Education and Awareness: Creating and distributing simple, accessible information about hepatitis through social media, printed materials, peer counselling, and public campaigns.
  • Combating Stigma: Promoting open conversations, challenging myths, and sharing real-life stories to change public perception and encourage testing and treatment.
  • Navigation and Support: Assisting individuals through the process from testing to treatment, helping with appointments, communication with healthcare providers, and ongoing motivation.
  • Healthcare Partnerships: Working with medical institutions to improve the quality and accessibility of services, contribute to programme development, and monitor the availability of diagnostics and treatment.
  • Advocacy and Rights: Campaigning for free and equitable access to hepatitis services, pushing for the inclusion of community voices in national health strategies, and mobilising resources and donor support.
  • Mutual Support and Safe Spaces: Running support groups, offering psychological assistance, and encouraging treatment adherence through community solidarity.

In line with its charter, ISHONCH VA HAYOT actively promotes access to hepatitis treatment, supports prevention and harm reduction initiatives, and advocates for reducing the cost of medicines and diagnostic tools. The organisation is committed to being an equal partner in achieving the goal of eliminating viral hepatitis by 2030.

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Hepatitis and PWID/harm reduction 

 

11:35 – 11:40  

Chair: WHO – Intro and set the scene.  

 

11:40 – 11:55  

Co-chair:  EMCDDA – Monitoring viral hepatitis elimination among PWID in Europe. 

 

11:55 – 12:00 

ID 29: Ema Pos (not yet registered) 

Title: If the mountain won’t come to Mohammed: lessons from a decentralized Infectious Disease consultation. 

 

12:05 – 12:10  

ID 152: Brian Conway (Registered in person) 

Title: Community Pop-up Clinic: Cascade of Care and HCV Treatment of Vancouver’s inner-city PWID Populations.

 

12:10 – 12:15 

ID 212: Jasmine West (not yet registered) 

Title: From lived experience to lived expertise: a syndemic approach. 

 

12:15 – 12:20 

ID: 299 Mercy Nyakowa (Registered in person) 

Title: HCV and HBV prevalence and associated risk factors among people who inject drugs (PWIDs) in Kenya 

 

12:20 – 12:25 

ID: 133 Nalinikanta Rajkumar (Registered in person) 

Title: Rapid regimen of HBV vaccination: Does it work for high risk groups?  

 

12:25 – 12:30 

Q&A and closing remarks   

tHIS

 

IS 

 

BEN’S

 

 

 

BIG 

 

 

TEST

effective case finding strategies

Supported by Vir Biotechnology, Inc

During this session you will hear from hepatitis Delta expert, Dr. Maria Buti, and a patient who has lived with hepatitis Delta in a panel discussion moderated by Dr. Carey Hwang, Chief Medical Officer (interim) of Vir Biotechnology. This panel will inform perspectives on patient needs, opportunities for enhanced screening, and strengthening linkages to care.

Session Agenda

14:40 – 14:45    

Panel overview and introductions facilitated by Dr Carey Hwang (Vir Biotechnology)

14:45 – 15:05   

Panel discussion: Dr Maria Buti (University Hospital Vall d’Hebron, Spain), Milanka Barbosa, Dr Carey Hwang (Chief Medical Officer interim), Vir Biotechnology

15:05 – 15:10    

Final remarks and close