Asociacion Colombiana de Enfermos Hepaticos y Renales is a non-profit organisation founded in February 1999 by a group of people who, having overcome the difficult and enriching experience of liver or kidney disease, came together to support each other, helping all those who are ill, whether children, young people, or adults, especially those with limited financial resources.
They offer well-being and quality of life to kidney and liver patients, while raising awareness among physicians, public entities, and communities at large about the importance of preventing these diseases, especially the Hepatitis C Virus, in accordance with the National Hepatitis C Virus (HCV) Eradication Plan.
They are committed to the Community Management strategy with educational actions to disseminate and prevent viral hepatitis; Reaching vulnerable regions of Colombia by:
1. Establishing partnerships with other institutions.
2. Education and social mobilization, campaigns, and outreach on hepatitis.
3. Development of brochures for the general population.
4. Campaigns and outreach on hepatitis C.
5. Patient empowerment.
6. Academic conferences.
Their policies are aimed at developing a model of rights enshrined in the Colombian Constitution and focused on the well-being and quality of life of all those who are ill and their families, who have no one to turn to. This is why the Asociacion Colombiana de Enfermos Hepaticos y Renales’ mission is to provide real and comprehensive solutions to the health sector, raising national awareness in different social sectors and proposing effective and efficient solutions to the quality of life of our society through strategic alliances with various stakeholders.
The groups primarily benefit adults and children from social strata 1 and 2 affected by viral hepatitis A, B, and C, biliary atresia, cirrhosis, liver failure, kidney diseases, and liver and kidney transplants, among others. They work alongside patients and healthcare teams to facilitate the liver and kidney donation and transplant process. They are partners with healthcare, academic, and business institutions to
develop innovative ideas in the Colombian healthcare system, with initiatives that provide viable and long-lasting solutions that leave a mark on the health and well-being of Colombians.
Hepatitis and PWID/harm reduction
11:35 – 11:40
Chair: WHO – Intro and set the scene.
11:40 – 11:55
Co-chair: EMCDDA – Monitoring viral hepatitis elimination among PWID in Europe.
11:55 – 12:00
ID 29: Ema Pos (not yet registered)
Title: If the mountain won’t come to Mohammed: lessons from a decentralized Infectious Disease consultation.
12:05 – 12:10
ID 152: Brian Conway (Registered in person)
Title: Community Pop-up Clinic: Cascade of Care and HCV Treatment of Vancouver’s inner-city PWID Populations.
12:10 – 12:15
ID 212: Jasmine West (not yet registered)
Title: From lived experience to lived expertise: a syndemic approach.
12:15 – 12:20
ID: 299 Mercy Nyakowa (Registered in person)
Title: HCV and HBV prevalence and associated risk factors among people who inject drugs (PWIDs) in Kenya
12:20 – 12:25
ID: 133 Nalinikanta Rajkumar (Registered in person)
Title: Rapid regimen of HBV vaccination: Does it work for high risk groups?
12:25 – 12:30
Q&A and closing remarks
tHIS
IS
BEN’S
BIG
TEST
effective case finding strategies
Supported by Vir Biotechnology, Inc
During this session you will hear from hepatitis Delta expert, Dr. Maria Buti, and a patient who has lived with hepatitis Delta in a panel discussion moderated by Dr. Carey Hwang, Chief Medical Officer (interim) of Vir Biotechnology. This panel will inform perspectives on patient needs, opportunities for enhanced screening, and strengthening linkages to care.
Session Agenda
14:40 – 14:45
Panel overview and introductions facilitated by Dr Carey Hwang (Vir Biotechnology)
14:45 – 15:05
Panel discussion: Dr Maria Buti (University Hospital Vall d’Hebron, Spain), Milanka Barbosa, Dr Carey Hwang (Chief Medical Officer interim), Vir Biotechnology
15:05 – 15:10
Final remarks and close