World Hepatitis Day Initiatives

The World Hepatitis Alliance supports campaigners and patient organisations around the world to help make a difference to the lives of the millions of people living with viral hepatitis and to prevent new infections. To find out more on what is going on in your country, use the map below to find local organisations, World Hepatitis Day initiatives and other initiatives.

You can also look at our ‘Wall of Stories’ and submit your own personal experience of living with hepatitis or find other community resources including an Online Scrapbook and our latest Newsletters. The This is hepatitis... blog features bloggers from around the world talking about their experiences with hepatitis.

Name:
Org:
Country: United States
City: Tampa
Type: WHD

Marks World Hepatitis Day 2011 Awareness Bike Ride

"To give hope to the many people who are currently on Hepatitis C treatments. At the time of my ride, 24 weeks will have passed since I myself have finished my 48 weeks of treatments for Hepatitis C. These treatments are grueling and unforgiving to say the least. They take so much out of you that it leaves you depressed, fatigued, and at times wanting to just give up. There are so many gross side affects to the medicines that it leaves one not sure of even starting treatments at all."

"I hope to make people aware that “Hepatitis C is not just for junkies” as quoted by my very good friend Darren Ellwood from Australia who himself was diagnosed with the virus over 20 years ago through a bad blood transfusion and later underwent treatments to put the virus into remission. Darren has done so much to raise Hepatitis C awareness in Australia and has no plans for stopping. He is truly a walking inspiration. Please visit his page on facebook."

"When I reach my destination, which is Shands Hospital at the University of Florida in Gainesville, I will be seeing my nurse for the usual examination and then a blood draw. This particular blood draw is for my 24 week SVR. The term SVR is the goal of everyone who is on treatments for Hepatitis C and is the closest a person on treatments can come to a cure. It stands for Sustained Virologic Response. It means that there is no detectable amounts of the Hepatitis C Virus in you blood after 24 weeks without treatments. This is good!"

http://www.facebook.com/event.php?eid=205874019458445

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