Advocating for viral hepatitis

Advocating for viral hepatitis

It is the World Hepatitis Alliance’s job to make sure viral hepatitis is included as a priority on national and global health agendas

Over half of the world's governments are yet to develop a national strategy to tackle viral heaptitis. For a disease which kills the same amount of people as HIV, this lack of political priority is not good enough.

At the World Hepatitis Alliance, we know that strong patient advocacy is critical to achieving the goals set out in the WHO Global Strategy for Viral Hepatitis. As such, we undertake a number of activities to advocate for a world free from viral hepatitis:

THE WORLD HEPATITIS SUMMIT

We are the pioneers of the World Hepatitis Summit, a unique global policy biennial event that we organise with the World Health Organization (WHO) and in collaboration with a different host country for each Summit. Unlike many other viral hepatitis conferences, the Summit is a public health event which provides a platform to help countries effectively put in place interventions needed to tackle viral hepatitis and to address the challenges involved in it. Thw 2017 Summit took place 1 – 3 November 2017 at the World Trade Center in São Paulo, Brazil.

More information can be found here.

Holding Governments Accountable


Without purposeful implementation even the best strategy will be worthless. This is why it is so important to hold governments accountable for their level of responsiveness in terms of policy decisions and front-line processes and to ensure they are equipped to meet the goals and targets outlined in the Global Viral Hepatitis Strategy.

To that end, we are working with WHO to assess governments’ response to the epidemic through a Member State comprehensive survey. WHO will publish the results in a report entitled “Country Response Profile on viral hepatitis B and C (2016 - 2017)”, which will be launched in 2017. In parallel to this, we are conducting our own civil society survey to gauge what is REALLY happening on the ground from the perspective of our NGO members.

The areas of focus for our civil society survey are:

  • the level of our members’ engagement in their government’s response to viral hepatitis
  • the level of stigma and discrimination affecting people living with viral hepatitis in their country and what their government is doing about it
  • the level of access to diagnostics and treatment

If you are a WHA member and haven't completed the survery, click here.

Findings will also be released in 2017.

NOhep

NOhep is a global grassroots movement aimed at bringing all stakeholders together to eliminate viral hepatitis by 2030. Launched in 2016, NOhep firmly positions itself at the forefront of the elimination conversation, showcasing exemplary leadership, fostering on the ground innovative solutions and taking action to support the policy change needed to eliminate the cancer-causing illness by 2030.

Being a part of NOhep means being part of the solution, because only together can we achieve a world with NOhep. Together with our members we are committed to grow the movement by continuing to provide the secretariat, secure financial resources and build strategic efforts.

To find out more about the development of NOhep and its global launch, watch this short video. You can also follow us on Twitter / Facebook and sign up to NOhep here.

TOOLS FOR CHANGE

Tools For Change is a three-part webinar series aimed at educating and up skilling viewers on various aspects of advocacy and the tools needed to effectively lobby for change. A number of panellists, including representatives from WHO, national governments and WHA member organisations, convened to share their perspectives and insights on how patient advocates can best engage with policy makers to effect real, on-the-ground change. To watch our webinars, click here.

KNOWLEDGE FOR CHANGE

Knowledge for Change is a webinar series aimed at educating patients and patient representatives about relevant topics in the area of viral hepatitis. So far, the topics addressed include access to diagnostics, medicines and generics. These webinars feature experts in the field and provide great insights into these complex topics. To watch our webinars, click here.

PATIENT ADVOCACY CREATION TOOL

We believe that patient organisations should be present and vocal at every level of national decision making and are vital to achieving a world free from viral hepatitis. However, despite viral hepatitis being a deadly global issue, patient organisations do not exist in all countries. As such, we have developed PACT, an online tool, to support the set-up of patient advocacy and support groups and help them grow.

PACT is primarily aimed at physicians and healthcare workers, because they are the people who are most likely to be in regular contact with large groups of patients, but it can be used by anyone who is interested in establishing patient groups for viral hepatitis. Find out more here.

BUILD STRATEGIC PARTNERSHIPS

As the only viral hepatitis organisation in official relations with the World Health Organization (WHO), we use our relationship with WHO to provide our expert opinion on matters related to viral hepatitis. We also have a Special Consultative Status with the United Nations Economic and Social Council (ECOSOC).

We work with a range of partners to promote viral hepatitis within the global health and development agendas to ensure it has the same priority as HIV/AIDS, tuberculosis and malaria. We believe that building partnerships is key in the deliverance of a world free from viral hepatitis. Find our more about our partnerships here.

CAPACITY/CAPABILITY BUILDING

Our members are the advocacy voice and as such influence direct national change. To support them make an even bigger impact on the ground, we implement a programme of capacity/capability building activities. Find out more about our programmes here.