Why raising awareness is important
Lack of public knowledge of the diseases, lack of knowledge among healthcare professionals and stigma and discrimination are all underpinned, in part, by a lack of awareness and so it is recommended that these three barriers should be collectively addressed.
When raising awareness, improving education and combating stigma and discrimination, different strategies are required for different populations and, as WHO suggests, they will be dependent on the country context and may include promotion through the mass media. In the Global Health Sector Stratergy it is stated
that “Concerted advocacy efforts, particularly by political and community leaders, and a sound communication strategy are required to increase public and political awareness of the public health importance of viral hepatitis…and to mobilize action”
This page will go into the detail of what you should advocate for to raise awareness.
Health authorities to ensure continuous medical education on viral hepatitis be provided from the early stages of training
1. Encourage the Ministry of Health to form a technical working group to support publication of clinical guidelines based on the latest World Health Organization recommendations. Ensure medical professionals and civil society are members of this group.
- Speak to a wide range of medical associations including those for nurses, GPs and other allied health professionals. Consider partnering with other health advocacy movements, such as HIV and women’s health.
- When discussing hepatitis C it may be helpful to focus on the unique aspect of being able to now cure a chronic disease. This could be especially relevant to GPs who spend a lot of time managing chronic disease.
2. Speak to your local health authorities or relevant medical associations to encourage them to include a greater focus on hepatitis. This should include the clinical aspects of the disease along with other areas such as stigma and discrimination.
3. Encourage medical professionals that you know to become NOhep Medical Visionaries and work with them to help them become champions for viral hepatitis within their workplace.
We spoke to Patricia Vélez Möller, President of the Guatemala Liver Patients Association about the work she has done to raise awareness with medical professionals.
4. Partner with local universities to raise awareness amongst medical students. Empower them to become future change makers.
5. Work with local clinics and health authorities to organise, or participate in, educational workshops to raise awareness of viral hepatitis amongst healthcare professionals and share the patient voice
- Offering Continuing Medical Education (CME) credits may encourage more healthcare workers to attend
Hazel Heal from Hep C Action Aotearoa shares her experience of self advocating to healthcare professionals.
6. Self-advocate. For those living with viral hepatitis learn as much as you can about the disease, your health, and your treatment options. Use this knowledge to empower yourself and ask questions to your healthcare provider about getting tested, the testing process and the treatments available. Offer suggestions and feedback to your healthcare team about ways to improve services for people living with viral hepatitis.
Enabling frameworks such as anti-discrimination laws and their enforcement and redress of discriminatory acts
- Look for a champion within parliament/government that you could partner with. UNITE is a group of parliamentarians that have come together to raise awareness and advocate to end HIV/AIDS, viral hepatitis and other infectious diseases and they may be able to connect you to champions within your country.
- Look at working with all relevant government departments, such as the Department of Labour and Employment.
1. If there are no anti-discrimination laws in place in your country, use article 16 of the World Health Assembly 67.6 resolution that urges Member States “to review, as appropriate, policies, procedures and practices associated with stigmatization and discrimination, including the denial of employment, training and education, as well as travel restrictions, against people living with and affected by viral hepatitis, or impairing their full enjoyment of the highest attainable standard of health;” to advocate for its implementation.
2. Where laws are in place, conduct a survey amongst the affected community to determine if they are being implemented in practice. Use this as the evidence for advocacy around enforcement and/or offer ways to improve implementation. Including the patient voice in these reports will strengthen the data.
- WHA conducted a global survey that addressed this issue and the report Holding Governments Accountable may be a good starting point if you are considering a local survey.
For many years, the Hepatitis B Foundation has advocated for people living with hepatitis B, but due to stigma, the patient voice had largely been missing. In 2016 the Hepatitis B Foundation made it a priority to find ways to showcase the stories of patients and families impacted by hepatitis B. They launched #justB, a campaign that shares powerful, personal stories of people who have been affected by hepatitis B and want to share their experiences to educate communities and inspire action. Read more here.
3. Capture stories about the impact of stigma and discrimination to personalise it. These can be powerful advocacy tools that will complement the other approaches in this section. Link up with other organisations such as advocacy based groups working on the issue, human rights law commissions and media/journalist watchdogs to identify and track cases of stigma and discrimination.
4. For those living with viral hepatitis you can offer your story to the media – become a spokesperson. You can use print, social media, TV and radio to share your experience of living with viral hepatitis.
- Partner with organisations offering training on how to share your story.
The decriminalisation of drug use and homosexuality as punitive laws hamper public health efforts
1. Speak with all the relevant stakeholders. For example, the Ministry of Justice and law enforcement agencies will likely need to engage in any response to ensure harm reduction services are able to be expanded and the rights of key populations are protected.
2. Look at public health studies conducted in countries that have decriminalised personal use of drugs, such as Portugal, and use successful outcomes as evidence for advocacy in your country.
- You may want to start by looking at countries that have harm-minimisation policies as this can be an important initial step in decriminalisation.
National governments to join all countries in upholding the commitment made at the 63rd World Health Assembly (2010) to use World Hepatitis Day to improve education and understanding of viral hepatitis
- Check the official World Hepatitis Day website and the latest WHD report for ideas and where applicable, involve your WHO country office.
1. Use the 2010 WHO resolution to hold your government accountable and encourage them to celebrate the day. Offer a partnership.
2. Hold a World Hepatitis Day activity/demonstration outside your government’s office.
- Contact the media to maximise impact.
- A useful instrument is to provide your national key opinion leaders and/or medical associations with a template letter that they can send to the government.
3. Work with other stakeholders to strengthen the collective voice calling for governments to celebrate the day.
Don’t limit your advocacy with governments to just World Hepatitis Day, this needs to be ongoing. Try to identify and create a group of champions within parliament/government. You can educate them on hepatitis and use them to raise awareness with their colleagues and more broadly. They have the potential to make great impact. You can also look at partnering with them on other initiatives too. Hepatitis testing weeks or awareness months, such as those in Europe and the USA, and NOhep campaigns are good opportunities for partnership.