Capacity and Capability Building

Capacity and Capability Building

World Hepatitis Alliance members receive a range of tools and resources that help build national capability and strengthen advocacy efforts

Throughout the year, the World Hepatitis Alliance provides a range of resources and leads a number of activities to support the development and running of national organisations, the strengthening of advocacy and policy work, as well activities to support awareness-raising and fundraising. Below you will find a snapshot of resources and activities we offer to help build capacity and capability.

World Hepatitis Alliance Members' Webinar

This year, we celebrate ten years of the World Hepatitis Alliance and in those ten years previously unimaginable progress has been made. To ensure we keep the momentum and continue to work together, we hosted a Members' Webinar in February. 

Tune in to hear from staff at the World Hepatitis Alliance discuss the vision for 2017 and their planned activities and key dates. You will also get exciting updates about World Hepatitis Day the World Hepatitis Alliance Pre-Summit Member Conference. To support the webinar, please the following:

Don’t forget to fill in the webinar evaluation form to be in with a chance to win £50 worth of Amazon vouchers.

 

HCV Quest

Understanding the impact viral hepatitis has on a patient’s personal and social life is central to combatting this global disease so in 2014, we commissioned a global patient survey to investigate how viral hepatitis C can impact patients’ lives as well examine patients’ experience of care.

This HCV Quest survey revealed a shocking reality and the findings are still being used in global and national patient advocacy to challenge governments and health policy makers to do more to fight viral hepatitis.

It was conducted over six months between July and December 2014, translated into 35 different languages and has been made available online and in hard copy to patient groups and physicians around the world. The findings have been developed and translated into a global report and 22 local country reports. Find out more here.

PATIENT ADVOCACY CREATION TOOL

We believe that patient organisations should be present and vocal at every level of national decision making and are vital to achieving a world free from viral hepatitis. However, despite viral hepatitis being a deadly global issue, patient organisations do not exist in all countries. As such, we have developed PACT, an online tool, to support the set-up of patient advocacy and support groups and help them grow.

PACT is primarily aimed at physicians and healthcare workers, because they are the people who are most likely to be in regular contact with large groups of patients, but it can be used by anyone who is interested in establishing patient groups for viral hepatitis. Find out more here.

TOOLS FOR CHANGE

Tools For Change is a three-part webinar series aimed at educating and up skilling viewers on various aspects of advocacy and the tools needed to effectively lobby for change. A number of panellists, including representatives from WHO, national governments and WHA member organisations, convened to share their perspectives and insights on how patient advocates can best engage with policy makers to effect real, on-the-ground change. To watch our webinars, click here.

KNOWLEDGE FOR CHANGE

Knowledge for Change is a webinar series aimed at educating patients and patient representatives about relevant topics in the area of viral hepatitis. So far, the topics addressed include access to diagnostics, medicines and generics. These webinars feature experts in the field and provide great insights into these complex topics. To watch our webinars, click here.